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The age-adjusted rate for American Indian and Alaska Native males has fluctuated around 20 per 100,000. In fact, a national study of life expectancy found that the lowest life expectancies in the country (including inner city ghettos) for both men and women exist in Indian populations, are similar to ones seen in sub-Saharan Africa, and are the lowest of any nation in this hemisphere except Haiti (IHS, 1998, Section VII). To compound these findings, prevailing economic conditions reveal that 32% of American Indians and Alaska Natives live below the poverty level, compared to 13% of the U.S. general population as of 1990.

Conclusions
There are detectable emergent disability trends, in at least two categories: increasing rates of disability and related conditions, and the emergence of new disabling conditions. Although a number of infectious diseases such as meningitis, hepatitis, pneumonia, and tuberculosis continue at rates much higher than in the general population, the overall rate of infectious diseases seems to be decreasing. The most dramatic increase in a chronic disabling condition among American Indians and Alaska Natives is with diabetes and several conditions associated with the disease. Social pathologies due to violence and accidents are also much higher than the national norm. Emerging disabling conditions would include HIV / AIDS, which IHS has been tracking only since 1987, and FAS, which was identified in 1973 but has yet to be recognized by RSA as a disabling condition.

Further examination of data reveals that existing monitoring systems have identified several trend clusters; one associated with diabetes, another associated with alcohol, and a third associated with injuries and violence. Limitations of data collection from monitoring systems point to problems connected with the public health monitoring of American Indians and Alaska Natives, such as determining who is Indian, how to track individuals who lack telephones or unlisted mail addresses, and the variation in the types of data collected when utilizing diagnostic labels versus functional categories.

Policy implications for these systems have revealed Healthy People 2000 prioritizing the monitoring of suicide rates among American Indians and Alaska Natives, yet lack goals for improving their mental health. Policy change may also result from studies conducted by the World Health Organization’s committee on International Classification of Impairments, Disabilities, and Handicaps (ICIDH), which serves as a multipurpose classification system that assists understanding the concept of disability (and emergent disability) in a wider context by systematically grouping consequences associated with health conditions.

Other implications involve the ability of the IHS to achieve its performance indicators, which has been lacking due to legislative budgets not meeting the costs of services and staffing needs. For a growing number of American Indians and Alaska Native people, the belief in the assurance of adequate health care is beginning to be perceived as another broken promise from the Federal government. Finally, public health initiatives, which have often stopped short of their goals while attention shifts to other priorities, should have maintained their focus of Healthy People 2000 objectives in their work with American Indians and Alaska Natives.

Recommendations
The following recommendations are offered to address both data issues and future issues related to American Indians with disabilities to plan more effective policies, prevention strategies, and vocational rehabilitation.

  1. To have all agencies utilize an accurate tracking information system that would monitor and categorize diabetes and related disabilities.
  2. Monitoring systems that can track the disabilities of urban American Indians in a comparable format to that of other data systems, such as IHS and BIA.
  3. Monitoring systems need to over-sample American Indians and Alaska Natives to obtain sufficient data to assure reliability, and address a frequent complain of data reviews for Health People 2000.
  4. In addition to mail and phone surveys, culturally sensitive methods of collecting information need to be developed that can successfully gather data from rural and remote areas where mail and phone surveys are unconventional.
  5. IHS must fully implement their Mental Health / Social Services data reporting system, by compiling collected information in a usable form, to track the mental health status of American Indians.
  6. Creation of a standardized categorization of disabling conditions, including secondary conditions, developed by the World Health Organization (WHO) with their International Classification of Impairments, Disabilities, and Handicaps. Tribal vocational rehabilitation programs should be encouraged to use the standardized format.
  7. Agencies and health providers have the opportunity to work with individuals and tribes to promote well-being and work towards prevention and intervention of certain disabilities in a culturally competent way. By using information on emerging disabilities effectively, planners can implement more effective prevention and early intervention strategies, thereby eliminating the need for expensive rehabilitation later on.

Funding for AIRRTC projects and dissemination materials are awarded by the National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education (DOE), grant number H133B980049. The contents of this publication are the sole responsibility of the grantee, and opinions expressed herein do not necessarily reflect the position or policy of NIDRR, OSERS, or DOE.

Emerging Disabilities project at AIRRTC was funded by The Center on Emergent Disability, the University of Illinois at Chicago, supported by a grant from NIDRR, grant number H133A60051.

Fact sheet no. 9 compiled and edited by Priscilla Lansing Sanderson, Julie Anna Clay, Caroline Maul, and Allen D. Scott. The full technical report, Emerging Disabilities: American Indian Issues, is available from the American Indian Rehabilitation Research and Training Center. To request AIRRTC reports and AIRRTC publication catalog, contact the AIRRTC Training and Dissemination Secretary at (520) 523-7054, FAX (520) 523-9127, or TTY (520) 523-1695.

This document is available in alternate formats upon request by contacting the AIRRTC Training and Dissemination Secretary at (520) 523-7054, FAX (520) 523-9127, or TTY (520) 523-1695. AIRRTC is located at the Institute for Human Development, an Arizona University Affiliated Program at Northern Arizona University.

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