The
age-adjusted rate for American Indian and Alaska Native males has
fluctuated around 20 per 100,000. In fact, a national study of life
expectancy found that the lowest life expectancies in the country
(including inner city ghettos) for both men and women exist in Indian
populations, are similar to ones seen in sub-Saharan Africa, and
are the lowest of any nation in this hemisphere except Haiti (IHS,
1998, Section VII). To compound these findings, prevailing economic
conditions reveal that 32% of American Indians and Alaska Natives
live below the poverty level, compared to 13% of the U.S. general
population as of 1990.
Conclusions
There are detectable emergent disability trends, in at least two
categories: increasing rates of disability and related conditions,
and the emergence of new disabling conditions. Although a number
of infectious diseases such as meningitis, hepatitis, pneumonia,
and tuberculosis continue at rates much higher than in the general
population, the overall rate of infectious diseases seems to be
decreasing. The most dramatic increase in a chronic disabling condition
among American Indians and Alaska Natives is with diabetes and several
conditions associated with the disease. Social pathologies due to
violence and accidents are also much higher than the national norm.
Emerging disabling conditions would include HIV / AIDS, which IHS
has been tracking only since 1987, and FAS, which was identified
in 1973 but has yet to be recognized by RSA as a disabling condition.
Further examination
of data reveals that existing monitoring systems have identified
several trend clusters; one associated with diabetes, another associated
with alcohol, and a third associated with injuries and violence.
Limitations of data collection from monitoring systems point to
problems connected with the public health monitoring of American
Indians and Alaska Natives, such as determining who is Indian, how
to track individuals who lack telephones or unlisted mail addresses,
and the variation in the types of data collected when utilizing
diagnostic labels versus functional categories.
Policy implications
for these systems have revealed Healthy People 2000 prioritizing
the monitoring of suicide rates among American Indians and Alaska
Natives, yet lack goals for improving their mental health. Policy
change may also result from studies conducted by the World Health
Organization’s committee on International Classification of Impairments,
Disabilities, and Handicaps (ICIDH), which serves as a multipurpose
classification system that assists understanding the concept of
disability (and emergent disability) in a wider context by systematically
grouping consequences associated with health conditions.
Other
implications involve the ability of the IHS to achieve its performance
indicators, which has been lacking due to legislative budgets not
meeting the costs of services and staffing needs. For a growing
number of American Indians and Alaska Native people, the belief
in the assurance of adequate health care is beginning to be perceived
as another broken promise from the Federal government. Finally,
public health initiatives, which have often stopped short of their
goals while attention shifts to other priorities, should have maintained
their focus of Healthy People 2000 objectives in their work with
American Indians and Alaska Natives.
Recommendations
The following recommendations are offered to address both data issues
and future issues related to American Indians with disabilities
to plan more effective policies, prevention strategies, and vocational
rehabilitation.
To have all agencies utilize an accurate tracking information
system that would monitor and categorize diabetes and related
disabilities.
Monitoring systems that can track the disabilities of urban
American Indians in a comparable format to that of other data
systems, such as IHS and BIA.
Monitoring systems need to over-sample American Indians and
Alaska Natives to obtain sufficient data to assure reliability,
and address a frequent complain of data reviews for Health People
2000.
In addition to mail and phone surveys, culturally sensitive
methods of collecting information need to be developed that can
successfully gather data from rural and remote areas where mail
and phone surveys are unconventional.
IHS must fully implement their Mental Health / Social Services
data reporting system, by compiling collected information in a
usable form, to track the mental health status of American Indians.
Creation of a standardized categorization of disabling conditions,
including secondary conditions, developed by the World Health
Organization (WHO) with their International Classification of
Impairments, Disabilities, and Handicaps. Tribal vocational rehabilitation
programs should be encouraged to use the standardized format.
Agencies and health providers have the opportunity to work
with individuals and tribes to promote well-being and work towards
prevention and intervention of certain disabilities in a culturally
competent way. By using information on emerging disabilities effectively,
planners can implement more effective prevention and early intervention
strategies, thereby eliminating the need for expensive rehabilitation
later on.
Funding
for AIRRTC projects and dissemination materials are awarded by the
National Institute on Disability and Rehabilitation Research (NIDRR),
Office of Special Education and Rehabilitative Services (OSERS),
U.S. Department of Education (DOE), grant number H133B980049. The
contents of this publication are the sole responsibility of the
grantee, and opinions expressed herein do not necessarily reflect
the position or policy of NIDRR, OSERS, or DOE.
Emerging Disabilities
project at AIRRTC was funded by The Center on Emergent Disability,
the University of Illinois at Chicago, supported by a grant from
NIDRR, grant number H133A60051.
Fact sheet
no. 9 compiled and edited by Priscilla Lansing Sanderson, Julie
Anna Clay, Caroline Maul, and Allen D. Scott. The full technical
report, Emerging Disabilities: American Indian Issues, is available
from the American Indian Rehabilitation Research and Training Center.
To request AIRRTC reports and AIRRTC publication catalog, contact
the AIRRTC Training and Dissemination Secretary at (520) 523-7054,
FAX (520) 523-9127, or TTY (520) 523-1695.
This document
is available in alternate formats upon request by contacting the
AIRRTC Training and Dissemination Secretary at (520) 523-7054, FAX
(520) 523-9127, or TTY (520) 523-1695. AIRRTC is located at the
Institute for Human Development, an Arizona University Affiliated
Program at Northern Arizona University.
ISBN:
NAU is an Equal
Opportunity / Affirmative Action Institute NAU Creative Communications/G39840/1M/03-01